For families and caregivers

• Take it one stage at a time. The Family Journey shows what to do now.
• Connect with other parents. They know what you are going through.
• Your state's Parent Training and Information Center helps with school, for free.
• Family Voices and Family-to-Family Health Information Centers help with health care and insurance.

Find your Parent Center · Family Voices · Parent groups near you

Siblings often have the longest relationship with the person with IDD. They need information and support of their own, at every age.

• Sibshops are fun workshops for school-age siblings.
• The Sibling Leadership Network connects adult siblings and helps them plan for the future.
• Include siblings in future planning early. Future planning guide.

Sibling Leadership Network · Sibling Support Project and Sibshops

Respite is short-term care that gives caregivers a break. It can be a few hours, an evening, or a weekend, at home or somewhere else.

• Many Medicaid waivers pay for respite.
• Some states have respite grants or vouchers while you wait for a waiver.
• Lifespan Respite programs in many states help families of all ages.

Search respite near you · ARCH National Respite Locator

• Caregiver stress is real. It is okay to ask for help.
• Find a support group or counselor who understands disability.
• If you are in crisis, call or text 988, any time.

Caregiver support near you